Monday, April 30, 2012

Avery's Bucket List

This morning on Twitter a post from CTV News caught my eye. It was about a baby bucket list.

A little girl named Avery Lynn Canahuati from Texas is diagnosed with an incurable disease called Spinal Muscular Atrophy (SMA). Avery's parents have started a blog (written from Avery's point of view) about her bucket list - all the things she would like to do/has done in her life.

On her blog, she writes, "I have already lost the ability to move my legs and eventually I will lose the ability to move my arms and my head.  When that happens it will be difficult and eventually impossible for my body to pump air through my lungs which is why most babies, like me, who are diagnosed with SMA type 1 have a life expectancy of less than two years of age."

I believe Avery and her parents have extraordinary courage and are being extremely positive people by using their heartbreaking situation to inform others. One of her bucket list goals is to raise $1,000,000 towards finding a cure for SMA.

You can learn more about Avery and SMA at:

Avery's Blog -
Avery's Twitter -
Avery's Facebook -

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